15 radiation sessions = ✅
Radiation started on Wednesday, July 15th and ended 15 sessions later on August 6th. Like chemo, it was a routine that was once foreign, but became very familiar over time.
This was my experience:
- Since radiation was M-F with weekends off, it became a standard part of my work week. I would have back to back meetings until 12:45pm, then Uber to Prentice (Women’s Hospital at Northwestern Memorial) for radiation, then uber back to work for the remainder of the day. I quickly learned that driving and parking took too much time. #efficiency
- Radiation is in the basement of Prentice. No windows and a bit dreary, but everyone that works in that department is so friendly and upbeat. Must seriously be a job requirement and/or awesome management and hiring. Upon arrival, I’d swipe in and my name would appear on the tv screen monitor in the waiting room. Once the words “checked-in” next to my name turned to “ready”, I’d walk into the dressing room, change into a robe and wait.
- One of the nice Techs would then invite me back to the radiation room which is a huge room with a small table in the middle and a big machine.
- Once in the room they’d ask for my name, birth date, and radiation area… every single time. Just another check to eliminate human error.
- I’d hop up on the table and into my custom mold which kept my head and arms in the same position – on my back, arms behind my head. My right arm wasn’t able to lay flat because of my frozen shoulder, so by the end I had to force it in. Once in the mold, I’d remove my gown and put on glasses that look like Google glasses. BTW, whatever happened to those things?
- Once situated, I had to lay perfectly still while they moved me inch by inch to match up my markers – small tattoos they put on me during the planning session prior to the start of radiation to ensure everything is perfectly aligned.
- For the first 8 sessions, they draped a piece of copper (?) fabric on top of the radiated area (right chest). If I understood correctly, the purpose was to diffuse the radiation beams.
- Given my radiated area was near my heart, I had to hold my breath to move my heart out of the way. To make this process easier, they create a little game. When you look into those glasses, you see a blue line at the bottom, and an orange column that begins at the line and rises and falls as you breathe. There is a green box at the top. During radiation, you have to take a deep breath and land that orange column in the middle of the green box. If you overshoot, you have to let out a teeny bit of air. Once perfectly in the box, you hold your breath for approx 15-30 seconds. I did this 3 times each session, and more when getting X-rays (once a week). Each session lasted about 15-30 min.
- After the actual radiation session, I would reapply Aquaphor over the entire radiated area, get a Beatrix salad to go, and Uber back to work.
In terms of managing side effects, two different topical creams were prescribed: Mometasone (steroid) 2x/day and Miaderm (to prevent skin damage and burns) 3x/day. About 3 days into radiation, I broke out in massive hives all over my body. We realized it was from the Miaderm so I stopped using that immediately and have been using Aquaphor ever since. Dr Strauss (Radiation Oncologist) said the skin will be at its worst 2 weeks after radiation ends. Thankfully, I was only a little tender, swollen and red, and my skin did great overall. There is an area under my arm pit that must have missed the daily slathering of Aquaphor because it looks like a second degree burn and reminds me just how intense radiation is to your body, despite the pain-free way it is administered.
Foob (fake boob) updates:
Prior to radiation, my left expander had to be deflated to move it out of the way from the radiation beams and my right side had to be over-inflated since the skin may contract (shrink) post radiation. An hour after my last radiation session, I went to Dr Fine (plastic surgeon) to inflate my left expander so I could look/feel more even. Sometime in October/November, I’ll have phase 2 of my reconstruction where they will swap out the expanders for silicone implants.
Tamoxifen:
Because my breast cancer is ER (estrogen receptor)/PR (progesterone receptor) positive, I will need to start taking the drug Tamoxifen via pill once a day for the next 5+ years.
What is it? Tamoxifen is the oldest and most-prescribed selective estrogen receptor modulator (SERM). It is prescribed to treat women and men diagnosed with hormone-receptor-positive, early-stage breast cancer after surgery/chemo/radiation to reduce the risk of the cancer coming back (recurring).
How does it work? Hormone receptor-positive breast cancers need estrogen and/or progesterone (female hormones produced in the body) to grow. Tamoxifen attaches to the hormone receptor in the cancer cell, blocking estrogen from attaching to the receptor. This slows or stops the growth of the tumor by preventing the cancer cells from getting the hormones they need to grow.
What are the side effects? Common side effects include bone and joint pain, hot flashes, nausea, fatigue, depression, headaches, mood swings, hair loss, trouble sleeping, loss of libido. Don’t be jealous. Some people experience such bad side effects that they have to stop. Others only experience very mild side effects and are completely fine. Everyone’s different.
To be honest, of all the different things I’ve had to tackle in this adventure, I’m most nervous about this little pill, Tamoxifen. I’ve never had to regularly take any type of medicine aside from birth control pills, which ironically may be part of the reason why I’m writing this blog in the first place! My oncologist said to take a few weeks off after radiation to give my body a break and then pick a date and start. I am planning to start Tamoxifen sometime after Labor Day. Wish me luck!
Aside from all of that, my eyelashes all fell out! It was so annoying. I thought I’d be more self conscious, but as Dillon so gently reminded me: “No one is noticing your eyelashes. You’re bald… they’re noticing your head.” Good point. Gotta love the directness of a 15 year old boy. Speaking of being bald, the hair on my head has just started growing back in and it’s a cool mix of black and grey. It’s as soft as a duckling and I can’t stop touching it.
Will post another update soon. Until then, we’re enjoying the last few days of summer and hope you are, too.
👩🏼🦲❤️


Banging the gong after my last radiation treatment















































